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Eosinophilic Support
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Division of Eosinophilic Support

The Division of Eosinophilic Support is a support, education and advocacy group for patients and families diagnosed with an eosinophilic gastrointestinal disorder, have restricted diets, or need feeding tube support. We serve both pediatric and adult patients. We want you to know, you are not alone.

Eosinophilic Gastrointestinal Disorders (EGID)

Eosinophilic gastrointestinal disorders (EGIDs) are chronic digestive system disorders in which certain food proteins trigger an overproduction of eosinophils (white blood cells that help fight certain infections) in different areas of the digestive tract.

EGIDs typically fall into one of three types:

 Eosinophilic esophagitis (EoE): EoE is the most common and difficult type of EGID to manage. It is characterized by inflammation of the esophagus due to abnormally high levels of eosinophils in that area of the GI tract. Symptoms can include abdominal pain, diarrhea, nausea, severe vomiting, difficulty swallowing, and, at times, obstruction.

Eosinophilic gastroenteritis: Associated with eosinophils and inflammation in the stomach and small intestine

Eosinophilic colitis: Associated with eosinophils and inflammation in the large intestine

Common symptoms of EGIDs
  • Vomiting or nausea
  • Abdominal or chest pain
  • Acid reflux that does not respond to usual therapy
  • Bloating
  • Blood in the stool
  • Diarrhea
  • Poor growth or weight gain
  • Difficulty swallowing
  • Gastroparesis
  • Malnutrition
  • Anemia
How to manage EGIDs

Your doctor may be able to identify specific food proteins that trigger the overproduction of eosinophils in your child. Your doctor may recommend an elimination diet where the offending proteins are not consumed. Often a stricter diet — an amino acid-based diet — is prescribed.

Advocacy

UFAN-DOES is the leading voice in Utah, representing individuals and families diagnosed with an eosinophilic disorder. Since the beginning, DOES has worked tirelessly to make Utah a safer place for you and your family.

UFAN-DOES has continued to advocate on Utah’s Capitol Hill for insurance coverage of medical foods (elemental formula). We are committed to working with our local and national partner organizations, researchers, physicians, legislators, and patients in an effort to gain access to this effective treatment for patients who rely on it.

UFAN-DOES works to keep Utahn’s aware and informed on issues related to an eosinophilic disorder. By attending community events, working with local T.V. media, newspaper, and radio, we have been able to educate thousand about this rare disorder and advocate on your behalf. We will continually strive to be a presence in the community in order to educate others about the issues and struggles of patients and families diagnosed with an EGID.

Anyone can be an advocate. Let your voice be heard. If you would like to stay informed on issues related specifically to Utah or you would like to join our efforts, please contact our volunteer specialist: jalverson@utahfoodallergy.org

DOES Resources

American Partnership for Eosinophilic Disorders

http://apfed.org/

CURED Foundation

https://curedfoundation.org/

CEGIR

https://www.rarediseasesnetwork.org/cms/cegir

C-EOS

http://c-eos.org/

CSS Association

http://www.cssassociation.org/

Food Allergy Research & Education (FARE)

http://www.foodallergy.org/

Food Allergy & Anaphylaxis Connection Team (FAACT)

http://www.foodallergyawareness.org/

Oley Foundation (Support for individuals requiring eternal and parental nutrition)

http://www.oley.org/

Feeding Tube Awareness Foundation (Support for individuals living with feeding tubes)

http://www.feedingtubeawareness.org/

Keep in touch!

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